The TS Alliance said Friday that Comedy for a Cure will be held April 12 at the Globe Theater in Universal City, Calif. Foulkes also is executive vice president at CVS Health, the parent company of CVS/pharmacy.
Over the past 13 years, the event has raised about $4 million to support TS Alliance research efforts as well as programs for people with tuberous sclerosis complex (TSC).
CVS Health has been involved in Comedy for a Cure since 2005 and supported the event through generous sponsorships, according to the TS Alliance.
“Helena has served on the honorary committee of Comedy for a Cure since 2012 and has been instrumental in TS Alliance government advocacy efforts by garnering Congressional support for the appropriation for TSC research in the Congressionally Directed Medical Research Program budget,” Kari Luther Rosbeck, president and chief executive officer of the TS Alliance, said in a statement.
Since the Food and Drug Administration’s approval of Sabril (vigabatrin) in 2009, CVS Health has served as one of four specialty pharmacies that distribute the medication according to strict safety requirements, the alliance noted.
“Under Helena’s leadership, CVS Health has gone above and beyond to ensure the needs of children and adults with TSC are met through timely medication delivery and by working tirelessly with the TSC community and insurance companies to mediate any issues with coverage,” Rosbeck added.
TSC is a multisystem genetic disorder that causes tumors to form in vital organs — primarily the brain, heart, eyes, kidneys, lungs and skin — and is the leading genetic cause of autism and epilepsy, the TS Alliance reported.About 50,000 people in the United States and more than 1 million people worldwide suffer from the disease.